Originally written by KiliaArts
passed along one because it needs to be read and understood.Here are a few things to help you become aware of what endo (short for endometirosis) is, so if yourself, a friend, your partner (girl friend/wife) your mother or your sister ends up diagnosed with it you will know:
A. What it is
B. What they’re talking about
C. how to go about and support them/what to say what not to say and what to expect.
So what is endometriosis and how does it affect the person?
Endometriosis is when the lining of the uterus grows on the outside, when a girl has they’re menstruation it will act as it would if it were in the uterus, it will break down and shed (Bleed), the girl then ends up by bleeding on the inside. Endometriosis appears as small or large tumor like tissues planted around the pelvic cavity, this causes adhesion’s that bind different organs together and can also cause inflammation and pain. Although it is commonly found in the pelvic cavity it can also be found on the bowel an bladder, very rarely does it make its way through the blood stream and up into the brain, eyes and heart etc.
Okay so I get that, but how does it affect them?
A girl/woman with endometriosis can suffer from excruciating pain, where it gets so bad that some girls they’re bodies don’t know how to deal with it and they end up vomiting or passing out, it can also cause a girl to bleed non stop for quiet a few months, with no break or spotting, girls can experience this pain all through they’re menstruation or all the time even if they aren’t bleeding. The pain isn’t just a cramp, some will experience cramping along with sharp stabbing pains, others will just experience stabbing pains, the pain goes through the lower pelvis around to the lower back and down the upper thighs.
Girls can also experience, Nausea, vomiting, headaches, the inability to concentrate, exhaustion from both not sleeping and having a very run down body, low immunity, inability to pass urine, the feeling of needing to pass urine just after going, Constipation and diarrhea and loss of appetite.
When someone is so sick and rundown they suffer not only from pain or feeling ill but also the inability to do normal things around the house, things like doing the dishes are often put off because one doesn’t have enough strength too, or else they need to get someone else to do it, or do it over short periods of time throughout the day. Small things like going for the shower becomes a daily struggle as just standing in the shower can take up energy or cause huge amounts of pain.
They don’t feel like they are really alive, they can feel so drugged out despite not been drugged, to the point where they might be listening to someone talk but not feel like they are really there.
Someone that is unwell with a life long illness often feels like they aren’t living and more like just fighting to live. Life doesn’t seem to have an importance to them after a while, its just constant fighting and pushing to do things that are very simple, even keeping friendships can become a challenge because those around her don’t understand what she’s going through and don’t like who she has become.
That doesn’t sound fun is there a cure?
No, there is no cure for endometriosis, there are things that can help mend the symptoms and slow down the forming of more endometrial tissue but they do not cure the disease.
Different things include:
Birth control pill (Contraceptive pill), taken daily to help stop the menstrual cycle, for some it will work others it won’t.
Marina: Hormonal implant that gets inserted into the uterus, is used to stop menstrual cycle, doesn’t work for all.
Depo Lupron/Provera: Like with the others they are also a hormone which is instead of swallowed or implanted it is injected and is only taken every three months. Works for some but not all, most don’t like it due to the side effects.
Surgery: Used to burn off the endometriosis/cut it off, endo usually grows back over time.
Endo Diet: cutting out certain foods like wheat, dairy and sugars, this is used to help detox your liver, doesn’t help for all.
My friend hardly catches up with me or cancels things a lot now, did I do something wrong?
If she has endo then no, its not on what you’ve done but more that she needs to rest or has no energy, as I said small things can take a lot out of her, maybe go over and check up on her, see if she needs anything or talk to her over the phone if she’s up for it, if not just send a text.
What can I do to help her?
Let her know that your there for her is the best thing you can do, also research! If you don’t know something don’t presume you know, look it up and see what it is like for someone to go through this.
If they aren’t feeling well or say they are feeling weak or tired or even in a lot of pain, don’t try to tell them you know what its like, that won’t be taken the right way, if you don’t know what to say just let them know that your there for them, she will be very glad to hear that.
Please help raise awareness of endometriosis by posting this on your blog or looking for something else to reblog. Yellow is for endo, wear yellow this month to show support for those fighting this incurable disease.
For those of you that are fighting with this along side of me, keep fighting, don’t ever give up!.